This doesn't really contain a spoiler as far as I'm concerned but just a couple things might spoil it a bit I guess.
Thank you so much for helping to raise awareness about NF. This is a very real and difficult condition for many people, and parents like me struggle to explain this condition to our friends and family. While someone else has reviewed this episode and noted that NF2 is the more severe condition, they are incorrect in stating that NF1 doesn't present with severe conditions. My own child has Tibial Pseudarthosis as part of this condition, which is a broken, unhealing bone. He has to be monitored for tumours of the optic nerve, and many other conditions. He has a friend currently in hospital, who has a large plexiform neurofibromas (branching Tumour) and Liver cancer. We have shed many a tear for other NF angels who have lost their lives fighting this disorder. It is true that NF can be very mild, but it can cause numerous tumours, some of which can be extremely complicated. Bone deformities and learning difficulties are also associated.
While it's true a little more information could have been given, for example the facts that it doesn't necessarily cause tumours, I understand that you have a particular following and audience to get this information out to in a limited time, and don't want to bore the audience either. I think you handled the story well, inspiring sympathy without boring with details, and I thank you for not creating an evil NF character, or making them a murder victim which I as a parent of a child with NF would have been upset by.
Thanks too for the Nod to the Children's Tumour Foundation. Www.ctf.org. They do amazing work and this is the website I would also direct anyone seeking more NF information to. Not sure if it was put up in the US, but I would have loved to have seen another nod to the CTF at the end and a reminder to check their website for more information.
Love the show. Loved your efforts to raise awareness. Hopefully one day we will have a cure or better treatment options and it is only with help from the likes of your team that we can achieve this.
Thank you so much for helping to raise awareness about NF. This is a very real and difficult condition for many people, and parents like me struggle to explain this condition to our friends and family. While someone else has reviewed this episode and noted that NF2 is the more severe condition, they are incorrect in stating that NF1 doesn't present with severe conditions. My own child has Tibial Pseudarthosis as part of this condition, which is a broken, unhealing bone. He has to be monitored for tumours of the optic nerve, and many other conditions. He has a friend currently in hospital, who has a large plexiform neurofibromas (branching Tumour) and Liver cancer. We have shed many a tear for other NF angels who have lost their lives fighting this disorder. It is true that NF can be very mild, but it can cause numerous tumours, some of which can be extremely complicated. Bone deformities and learning difficulties are also associated.
While it's true a little more information could have been given, for example the facts that it doesn't necessarily cause tumours, I understand that you have a particular following and audience to get this information out to in a limited time, and don't want to bore the audience either. I think you handled the story well, inspiring sympathy without boring with details, and I thank you for not creating an evil NF character, or making them a murder victim which I as a parent of a child with NF would have been upset by.
Thanks too for the Nod to the Children's Tumour Foundation. Www.ctf.org. They do amazing work and this is the website I would also direct anyone seeking more NF information to. Not sure if it was put up in the US, but I would have loved to have seen another nod to the CTF at the end and a reminder to check their website for more information.
Love the show. Loved your efforts to raise awareness. Hopefully one day we will have a cure or better treatment options and it is only with help from the likes of your team that we can achieve this.